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Posts Tagged ‘cancer’
Pictures of Purpose

Peace of mind is worth a lot to a mom. Well, it’s at least worth the $20 co-pay to your child’s pediatrician when you are worried about something. Call me a hypochondriac, but I’m one of those people who’d rather worry and be safe, than shrug it off and be sorry.

So this weekend, when a photo of my sweet baby came up with a “red eye” reflex that was actually white, I immediately became concerned. Of course, this happened when 30 people were at my house. These kinds of things only happen at inconvenient moments. To my surprise, no one at the party had ever heard about the “white eye” in a photo being a possible warning sign of several rare, but serious diseases. In particular, it’s a sign of the third most common cancer affecting children, Retinoblastoma. When I realized so few parents knew to be on watch for this, I knew I needed to share my information.

Though Retinoblastoma is still very rare —affecting only 1 in every 12,000 children — I still felt compelled to get it checked out. The trouble of a trip to the doctor’s office so I can sleep at night is worth it to me. And since Retinoblastoma is something that isn’t always looked for during a well visit, I thought it was worth the extra examination. Once my pediatrician reassured me that my little man was cleared of any concerns, she surprisingly mentioned that I was a well-informed mom to even know to look out for Retinoblastoma. Most likely if you see it in a photo, it’s just a matter of flash angle and a camera issue. Unless your pediatrician does a check in a darkened room, it can go unnoticed.

I do admit to being a bit of a knowledge seeker, especially with Google being at my fingertips. But I also have realized that over the years, ignorance is not bliss when it comes to your child’s health. I don’t recall when I originally stumbled on the information about the photo clues and Retinoblastoma, but I encourage everyone to research it so they know the facts as well.

I believe everything happens for a reason, and I hope reading this doesn’t cause any unnecessary worry. There’s a fine line between over worrying and being careful when it comes to health issues. I’m hopeful that my extra trip to the doctor and by sharing this information, I can raise awareness for a rather unknown, but treatable disease.

Visit www.lovejoey.com to get the lowdown on the disease, as well as read the story of one family who is trying to raise awareness after losing their adored son to Retinoblastoma.

 
Dear Crabby, I Hate Airline Delays!

Dear Crabby,

I hate it when the airlines promise to be on time and punctual and then are anything but that! Why can’t a plane just take off and land when they say it will?

Sincerely, Charles Landontime

Dear Mr. Landontime,

I think the simple answer here is NO! The airlines will always have delays, always make promises they cannot keep, and will always hire people that simply try to make your life as difficult as possible. I recently was trying to help a friend of mine fly to another city to get some medical treatments. He had not flown in over ten years, and the last time he flew he had a panic attack before the flight.  The attack was so bad, they had to stop the plane on the ground and get him off immediately.  In fact, they even had to drug him up enough so they could get him home. Well, anyway, he needed this treatment from another state and we did not have time to drive that far, so his new doctors gave him some sort of cocktail of medications to keep him calm. Because of all of this, I had to call ahead of time and try to arrange his flight with the airlines. I explained that I needed wheelchair access to the gate, and that he had an anxiety attack previously. They said they would make a note about it and that all would be ready when we got there. The day we were to fly out finally arrived, and we made our trek to the airport. I assured my friend that all was taken care of and that the airlines would be ready for us.  Boy, was I wrong!  As we arrived in the parking area, we discovered that they had no personnel anywhere nearby! We somehow managed to find a shuttle, load everything and everyone in, and finally arrived in the terminal to find there were no wheelchairs around. I walked about a half mile and finally found one we could use.  I looked for someone to help us, but no one was available. So I pushed my friend through the long, tedious terminal until we arrived at an eating area. I set all our bags down for a moment, because they were killing my back, and I pushed my friend into the restaurant to take a look at the menu when suddenly there were several airport employees around us telling us we were not allowed to leave our luggage unattended.  Thinking they were they were there to assist us, I said, “Oh, so glad to finally find you guys. Can you take a few of these and help us to our gate?” They all but laughed at me and went off saying that was not their job. Well, we finally made it to our gate and were ready for the flight.  I asked my friend to take his medicine, and he did. About ten minutes later, he was sound asleep and pretty much dead weight. I again asked that we get some help down to our seats and there was only a blank stare looking back at me. I once again was left to maneuver and handle everything myself as it was apparently no one’s job to be helpful that day. When we made it to the plane and had found our seats, the pilot announced that there would be a short delay. Another hour slipped by before we finally took off. The rest was pretty normal, minus arriving an hour later than expected. So I don’t know what to tell you, other than don’t volunteer unless you are up for doing all the work yourself – and never count on the airlines to be helpful, accurate, or even close!

Sincerely, Dear Crabby

Stuck in a rut? Need some advice from a crabby old baby-boomer? Ask DearCrabby@rochestermedia.com

 
BLOOD CANCER SUPPORT GROUP MEETS

ROCHESTER, MI – Crittenton and The Leukemia & Lymphoma Society are collaborating to bring social and emotional support to anyone in the community who is touched by a blood cancer diagnosis.  Meetings are free, and are held the second Wednesday of every month from 7 to 8:30 p.m. at the hospital.   Come and enjoy the support and caring of others who share your situation.  Please call 248-581-3885 for more information or register online at www.crittenton.com